Just Ducky Tours to introduce 7th vehicle into fleet at September 26 fundraiser to benefit Spinal Muscular Atrophy
Just in time for the Pittsburgh Children’s Museum’s “Cure SMA Gala: Sully’s Wish”, Just Ducky Tours will be unveiling their newest authentic WWII vehicle that will join the six others in their fleet. The vehicle has been named “Steel City Sully” and is a symbol of the strength and courage of those living with SMA. The gala will be held on Sept. 26, 2014 at 6:30 p.m. and is organized by Just Ducky Tours in honor of Sullivan Rossmiller who is a courageous 4-year-old boy living with Spinal Muscular Atrophy and a member of the Just Ducky Tours’ family.
Spinal Muscular Atrophy is a disease that affects the motor nerve cells in the spinal cord, destroying the ability to walk, eat or breathe without assistance. It is the number one genetic cause of death for infants under the age of two. One in every 10,000 babies is born with the disease and one in every 40 people (7.5 million Americans) carry the gene that causes it. When Sully’s mother, Cherise Rossmiller, was pregnant in 2010, she knew something wasn’t quite right. Sully was very small, and she and her husband, John, an Army Ranger were told their baby would likely have developmental issues.
Sully was born prematurely at 34 weeks, and though he was small, tests performed immediately after his birth showed he was alert and responding normally. But in the months that followed, Sully failed to thrive. He wasn’t rolling over or holding up his head. A series of tests when he was five months old revealed a diagnosis of Spinal Muscular Atrophy. He was given a prognosis: He wouldn’t live past the age of two. It has been a difficult journey, but Sully has outlived the expectations and turned four in April. We’re hoping to shine a spotlight on this devastating disease and help fund a cure. The fundraising event will feature a night of dinner and cocktails, silent and live auctions, raffle items, dancing and the opportunity to meet local Pittsburgh celebrities, including our event emcee, Lynne Hayes-Freeland from KDKA-TV.
As guests arrive for the gala, Sully Rossmiller and his family will be on hand to greet them. Steel City Sully will also be parked outside the Museum for guests to view. September 26th has been named Cure SMA: Sully’s Wish Day by Mayor William Peduto.
About Just Ducky Tours, Inc.
Just Ducky Tours is Pittsburgh’s only fully-narrated one-hour adventure through the city on LAND and WATER! Each excursion begins in historic Station Square before waddling through town and then splashing into the river. Passengers can experience the ride of their life in an authentic WWII amphibious vehicle from April to November! For the last 17 years, Just Ducky Tours has been quacking through the streets of Pittsburgh. For more information, visit www.justduckytours.comand on Facebook at www.facebook.com/jdtpittsburgh or on Twitter at @justduckytours.
About Spinal Muscular Atrophy
Spinal Muscular Atrophy (SMA) is a disease that robs people of strength by affecting the motor nerve cells in the spinal cord, taking away the ability to walk, eat, or breathe. It is the number one genetic cause of death for infants under the age of two. One in every 10,000 babies is born with the disease and one in every 40 people (that’s 7.5 million Americans) carries the gene that causes SMA. SMA can strike anyone of any race, age or gender, yet many do not know that it exists until it strikes their own family. There is no cure and no treatment – but we are asking you to help us change that. For more information visit www.fsma.org.