In case you have been under a rock and you don’t watch TV or play on social media. The Ice Bucket Challenge is where someone films themselves dumping a bucket of ice water on their head, donates money to ALS and challenges someone else to do the same. It has become and internet sensation. Celebrities and common folk alike have been challenging each other and piling up the donations to ALS close to 100 million at this point.
In a facebook post from the web site politicalears.com it states;
“ICE BUCKET FRAUD: ALS FOUNDATION ADMITS THAT 73% OF DONATIONS ARE NOT USED FOR ALS RESEARCH”
They also state;
“According to the ECFA, a charitable watchdog, 27% of donations actually making it to the cause they are donated to is unacceptable. In fact, the ECFA won’t deem a non-profit as a reliable charity unless at least 80% of donations make it to their intended projects.”
This statement might hold a little water if the ALS mission Statement was restricted to research. However it is a far reaching statement as follows;
“The mission of The ALS Association is to lead the fight to treat and cure ALS through global research and nationwide advocacy, while also empowering people with Lou Gehrig’s Disease and their families to live fuller lives by providing them with compassionate care and support.”
The break down;
Public and professional Education 32%
Patient and community Service 19%
Politicalears.com goes on to report that the salaries are out of this world. I will not go into all the pay just the CEO, Jane H. Gilbert – President and CEO –$339,475.00. According to Salary.com 339,475 is in the lowest tier for a CEO, with only 10% earning less than 399,795.00.
Research is invaluable, there is no disputing that. How are you going to pay for the research without fundraising? How are you going to raise money without educating people about the disease? And please, please, please do not forget the people currently fighting the disease and their families. The disease is not just a statistic; it affects real people upending their lives and the lives of all who love and care about them.
In a time when the world around us is filled with sadness and despair, and common sense has flown the coup. This generation me, where everything seems to be about me, me, me and people seem to be nothing but self centered and unapologetic, it is difficult not to feel hopeless. Then people from all over come together and make the absolute best of social media, selfies and pure innocent fun, for a great cause just to have it trashed. Who would want to kill such a beautiful thing and why? Could it be those perverted people? Those who thrive on drama and bringing down everything good so they don’t have to strive to be better? Who is the true fraud here? It is certainly not the ALS Foundation.